References

Websites

The following websites have provided invaluable information both to me personally throughout Mum’s journey and as a source of information included on this website.

Alzheimer’s Society – https://www.alzheimers.org.uk/

  • A source of information on dementia.
  • A source of information in planning ahead.

Alzheimer’s Research UK – http://www.alzheimersresearchuk.org/

  • A source of information on dementia.
  • A source of information on drugs used in dementia care.

Alzheimer’s Association – http://alz.org/

  • A source of information on dementia.
  • A source of information on the differences between Alzheimer’s disease and dementia with Lewy bodies.
  • As source of information on sundowning.

Lewy Body Dementia Association – https://www.lbda.org/

  • A source of information on Lewy body dementia.
  • A source of information on antipsychotic drugs.
  • A source of information on the impact of LBD on the family caregiver.
  • A source of information on REM sleep behaviour disorder.
  • A source of information on Capgras syndrome.

The Lewy Body Society – http://www.lewybody.org/

  • A source of information on Lewy body dementia.
  • A source of information on fluctuating cognition, visual hallucination and perception.

Parkinson’s UK – https://www.parkinsons.org.uk/

  • A source of information on Parkinson’s disease.

Mayo Clinic – http://www.mayoclinic.org/

  • A source of information on REM sleep behaviour disorder.

telmenow.com – https://www.telmenow.com/

  • A source of information on the symptoms of late stage Lewy body dementia.

Young Dementia UK – https://www.youngdementiauk.org/

  • A source of information on young-onset dementia.

Glossary of Terms

  • agnosia: The inability to process sensory information.
  • anosognosia: Unawareness of impairment after brain injury or stroke.
  • aphasia: A loss of the ability to produce and/or understand language due to injury to brain areas specialised for these functions.
  • apraxia: The loss of the ability to perform tasks that require remembering patterns or sequences of movements (like waving goodbye).
  • atrophy: Wasting away or shrinking. Neuronal atrophy is wasting away of neurons, a decrease in neuronal density.
  •  cognition: The mental action or process of acquiring knowledge and understanding through thought, experience, and the senses.
  • capgras syndrome: The irrational belief that a familiar person or place has been replaced with an exact duplicate.
  • cortex: The outer portion of an organ. In the brain, the outer portion of the cerebrum is the cerebral cortex.
  • dysphagia: Difficulty or discomfort in swallowing, as a symptom of disease.
  • gray matter: The cortex of the brain which contains nerve cell bodies. The gray matter is in contrast to the white matter, the part of the brain that contains myelinated nerve fibers. The gray matter is so named because it appears gray.
  •  infarct: a small localised area of dead tissue resulting from failure of blood supply.
  • mild cognitive impairment (MCI): An intermediate stage between the expected cognitive decline of normal ageing and the more-serious decline of dementia.
  • white matter: The part of the brain that contains myelinated nerve fibers. The white matter is white because it is the colour of myelin, the insulation covering the nerve fibers. The white matter is as opposed to the gray matter (the cortex of the brain which contains nerve cell bodies).