Lewy body dementia

Before Mum became ill I had never even heard of Lewy body dementia or dementia with Lewy bodies and I am now passionate about raising awareness. This section is dedicated to Lewy body dementia and includes all the key information I learnt throughout our journey with Mum.

What is Lewy body dementia?

There are 2 types of Lewy body dementias as follows:

  • Dementia with Lewy bodies – in which cognitive (thinking) symptoms appear within a year of movement problems.
  • Parkinson’s disease dementia – in which cognitive symptoms develop more than a year after the onset of movement problems.

Together dementia with Lewy bodies and Parkinson disease dementia are described as Lewy body dementia.

The main difference between the two Lewy body dementias, which essentially share the same array of symptoms, is how the disease starts i.e. whether the movement or cognitive problems occur first as detailed above. The other main differences are:

  • In dementia with Lewy bodies, tremor does not occur early, and is less severe than in Parkinson’s.
  • In dementia with Lewy bodies, problems with the autonomic nervous system are more prominent than in Parkinson’s disease dementia.
  • In Parkinson’s disease dementia psychiatric symptoms (e.g., hallucinations, delusions) appear to be less frequent and/or less severe than in dementia with Lewy bodies.
  • Dementia with Lewy bodies may progress more quickly than Parkinson’s disease dementia.

Articles about Lewy body dementia


Raising awareness about Lewy body dementia

To help raise awareness about Lewy body dementia I have created a range of t-shirts, sweatshirts and other products with the following design. Click here to visit the ‘Just Be Dementia Friendly’ products page. 

Lewy body dementia


There are 2 charities dedicated to raising awareness about Lewy body dementia. Their websites include lots of useful information about the disease.

The Lewy Body Society based in the UK and the Lewy Body Dementia Association based in the USA.

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