Book – Lewy body dementia: Our journey

As you probably know, our Mum died from dementia with Lewy bodies, one of the 2 types of Lewy body dementias. Before Mum got ill, I was fairly ignorant about dementia in general, and I had never even heard of dementia with Lewy bodies.

But I now firmly believe that, if at the beginning of Mum’s illness, we had known what we know now, then the journey would have been easier for all of us and we would have been able to keep her at home for longer than we did.

Same Destination … Different Journey

It is this belief that inspired me to write a book ‘Same Destination … Different Journey’ which charts our journey with Mum and the impact it had on our family. The book also includes all the key information you will need if you or a loved one is affected by a Lewy body dementia. Information, sadly, we often learnt far to late.


Received some really positive reviews about the book, see below. Chuffed to bits to be helping people deal with dementia with Lewy bodies in a much more effective and sensitive way.


5 star review received 24th January 2019.

I am one of three children of a father diagnosed with dementia with Lewy bodies. It took me six months to get to the point of looking for more than a google paragraph about the disease. I first found the free “LEWY BODY DEMENTIA, Information for Patients, Families, and Professionals” PDF from NIH, which is helpful and definitely worth reading as a baseline.
But THIS BOOK opened my eyes and heart in ways that no doctor, nurse, elder expert or shiny pamphlet could do. This book tells it like it is, clearly and calmly, and without holding back about the messy parts.
I found her advice about how to “enter their world” and how to have conversations with sounds instead of meaning to be completely relevant, even though we are not quite at that point. I absolutely did want to know how bad it can get, and I am extremely grateful for the frankness.
The attempt to clarify stages and timeline, with categories of symptoms, is so helpful.
The loving connection pours through and makes the content tolerable.
Thank you Emma.


5 star review received 10th January 2019.

Dementia is a distressing topic – but this book was such a comfort. I need to be an expert as of yesterday but didn’t even know how to begin. Easy jumping on point, feel less intimidated about the research now and so many helpful tips to help deal with nan. Bless Emma Haslegrave for writing down her experience with her mum, she’s been able to make this journey a touch easier.


5 star review received 01st January 2019.

Great information and easy read.


5 star review received 04th December 2018.

Thank you Emma for educating us on LBD! I highly recommend this book to anyone who has a loved one diagnosed with Lewy Body Dementia and wants to learn about it.


5 star review received 09th November 2018.

This book has already been invaluable to me. My dad was diagnosed this week with Lewy Body dementia. This book has helped me make sense of his symptoms, given me good information about the disease and the other types of dementia and the difference, and given me some hope for the road ahead. But its also not sugar coated what to possibly expect and how to have some coping strategies, and how to help him, and the types of care available. I would definitely recommend this to anyone. Thank you so much for writing this book.


5 star review received 31st March 2018.

The author generously has spent time to share her story of her mother and Lewy Body and all the various dimensions. The descriptions of medication, behaviours and what to expect are very helpful for whatever stage of the journey you may be on if you know someone with this disease. This may also be helpful for carers and medical staff who work around people affected by this.


4 star review received 19th October 2017.

Excellent – I am only half way through but it is a good read. I am a carer, with a nursing background but anyone dealing with any dementia, with no experience would find this so useful.


5 star review received 18 July 2017.

This book has a wealth of information.


4 star review received 15 May 2017.

This is a good book to read if you have someone suffering from Lewy Body dementia, which is different from Alzheimer’s. It helped me to understand that some of what I was experiencing with my loved one was par for the course and what tricks I can use.


5 star review received 21 April 2017.

My husband has Parkinson’s and what I believe to be DLB. Thank you for sharing your experiences about this awful disease. One doesn’t always get the help and support from professionals who should know about this. His CPN spent weeks trying to get him to take Quetiapine but he kept refusing. During a previous spell in hospital where he was diagnosed with dementia, he was prescribed it and he said it made him feel really ill and his symptoms worsened. He refused to take them again when he came home. No one mentioned Lewy Body and I was totally ignorant about dementia in general and had never heard of DLB. I only found out about it recently when I researched dementia online and realised his symptoms were exactly like DLB. I saw a reference to your book and downloaded it, which was probably the best thing I’ve done for a long time. I will now be able to deal with things in a much more sensitive way. Thank you so much. I would recommend this book to everyone who has to deal with DLB. It is an invaluable source of help and comfort.


5 star review received 28 March 2017.

I am so very glad I bought this book as it has definitely given me a great insight into dementia and has hopefully helped me understand the potential issues involved when looking after my elderly relatives. Hopefully I will be more patient and compassionate in the future. The real life journey interspersed with helpful facts has desensitised a difficult and shunned subject, and I will definitely be recommending this to everyone I know who has connections with any type of dementia.

 

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